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Juvenile Idiopathic Arthritis
Coping With Pain For Children With Juvenile Idiopathic Arthritis
If you've ever experienced aching joints, imagine what a child with Juvenile Idiopathic Arthritis must go through on a consistent basis. Here are some tips for coping with pain for children with Juvenile Idiopathic Arthritis.
Although the doctor should prescribe something to help with pain and inflammation, there are things you can do to help your child deal with the pain of Juvenile Idiopathic Arthritis.
Validate the pain. This is not to say to baby your child through the pain, though some extra hugs, love and concern during extremely painful times can go a long way to help ease your child's pain. If your child feels you care that he or she is hurting and go out of your way to be there, it will help a lot.
Moist heat or cool. The doctor might suggest your child sit in a tepid bath with epsom salts to relax your child. Alternately the doctor might suggest warm or cool compresses which can be as simple as a soaked towel wrung out enough to use on the child. The doctor might even suggest alternating heat and cool for your child's joint pain. Be sure to find out from your child's doctor if warm or cool moist heat is right for your child.
Movement. Your child may hurt to much to want to move the affected joint(s), but lack of movement can create stiffness and make joints hurt even worse. Encourage movement of the affected joint(s) eve if it's just small range of motion exercises while your child is relaxing reading a book or some other quiet activity.
Massage. You should only massage the affected joint(s) if recommended by your child's doctor. Certain people react differently to massage even in the same condition, so be sure to check with the doctor to be sure any home remedy or alternative therapy is okay to use on your child.
Doctor ordered treatments. Be sure your child attends all treatment sessions, including for physical therapy and possible cortisone shots. It is important to follow the doctor's care when helping your child, but you can do any of the above-mentioned home remedies if the doctor says it's all right to do so.
REFERENCE:
Kids Health; Juvenile Rheumatoid Arthritis; http://kidshealth.org/parent/medical/arthritis/jra.html#
Juvenile Arthritis to Rheumatoid Arthritis to PREMATURE DEATH???
My daughter was diagnosed with Juvenile Idiopathic Arthritis when she was 4 yrs old. She is one of the 10% (?) of kids who don't grow out of it (so is it now RA?) and, at the age of 20, it affects virtually every joint in her body, with permanent damage to her wrists and neck. From very early on, her mantra was "I will NOT allow my arthritis to rule my life" and, although obviously some activities are closed to her, she tries very hard to remain true to this. However, the other day, she was researching Rheumatoid Arthritis in order to write a newspaper article and, amongst the information she received, was one study (conducted among those who were diagnosed with RA at the age of 50) which said that RA could lead to premature death. One of the causes of death that was sited was renal failure - my daughter is already experiencing kidney problems that, so far, have not been satisfactorily diagnosed. Obviously, she/we are VERY scared. Is there any rheumatologist out there?
Why can't she speak to her consultant? She lives in Southern Ireland and is experiencing problems with her employers due to the sick leave she has taken (actually, perhaps only 10 days in the last 3 months - pretty good, given her condition?!) and has therefore delayed her next appointment.
Hmmm - thanx 'smartypants' - but methotrexate did nothing for her.
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